-She started having seizures when she got a fever in early August. So, we went to Children's hospital and they prescribed an anti-seizure medicine. She has been on it ever since and only has episodes when she gets sick. She had an EEG to see what was causing them, but all they could tell me is that the EEG showed she was more prone to having them. These are a little scary, but at least now we are knowledgeable about what they look like.
-Well, Payton was casted on her legs for the first time on August 26th. It went well and she was casted about 8 times. Dr. Song decided that it was time to do a heel extension on both feet. This is where they go a cut the Achilles tendon, so they can bring the heel up. After her surgery the doctor said that he didn't see as much improvement as he wanted to, so the new plan is to get a more extensive surgery done at about a year of age. This means no more casting, but we do have to continue physical therapy. But on the fun side we get have plenty of bath time!! Yeah!!
-We went to Kauai for my brother Brannon's wedding. Payton did great on the airplane and she got to put her feet in the ocean. We had a blast! There was snorkeling, volleyball, site seeing, boogie boarding, surfing, ect. The wedding ceremony was beautiful (on the beach) and the reception was awesome.
-Last, but certainly not the least Payton had her third MRI. This was just a follow up, but it showed some new information. At the last MRI reading they told us that she still the hydrocephalus, but it had not gone up. Also, that she had a grouping of cells they thought was a tumor (possibly benign) and that there was a piece missing from her cerebellum that might effect coordination. We were told that the hydrocephalus and missing piece would always be that way, but sometimes their brain can adapt and make up for the missing piece. Well, after this MRI the reading was much different........ the hydrocephalus is gone!! The tumor (or what ever it was) is only a little speck on the page and the missing piece is there!! Praise God!! It was so much information that it didn't hit me until we got out to the car. I couldn't believe what I had just heard! My daughter's brain is being healed and I know it's by God's mighty hand. Thank you for your prayers and continued support.
-Let that information sink in a little. I know it's a lot and I will try to update this more often! Thank you everyone for your prayers they mean so much!!
