New Splints

So, yesterday we had an appointment to get some new splints made. It was a tough day for Payton. I am waiting to get all the measurements from Lori, but she did say that her shoulders have improved!! She also had her first taste of rice cereal today (she only ate about 3 bites).

Also, I met a very nice couple yesterday up at Childrens Hospital with a 6 week old boy named Joshua with arthrogryposis. They are a very sweet couple and have 3 older kids also. Please keep them in your prayers and little Joshua. It's hard at first with all the doctor appointments and the unknown. Thanks everyone!! Talk to you soon.

Rolling over!!

Payton has been rolling over to one side for a while now and just two days ago she rolled over to the other side!! Yeah!! Our little girl is getting so strong. Also, Kelli (our physical therapist) is very excited to get Payton to her orthodics team. Get her weight bearing and in some different orthodics. Payton is still such a happy baby (she has finally started to smile and get tickleish). She has an appointment tomorrow with the Lori (the occupational therapist) at childrens to get new splints made and I will update all of you if I hear anything new. :)

So much new information!! It's a lot to take in, just a warning.

Let me first start by saying sorry, I am awful at these blogs. So, I am going to try to be better about updating everyone more often.

-She started having seizures when she got a fever in early August. So, we went to Children's hospital and they prescribed an anti-seizure medicine. She has been on it ever since and only has episodes when she gets sick. She had an EEG to see what was causing them, but all they could tell me is that the EEG showed she was more prone to having them. These are a little scary, but at least now we are knowledgeable about what they look like.

-Well, Payton was casted on her legs for the first time on August 26th. It went well and she was casted about 8 times. Dr. Song decided that it was time to do a heel extension on both feet. This is where they go a cut the Achilles tendon, so they can bring the heel up. After her surgery the doctor said that he didn't see as much improvement as he wanted to, so the new plan is to get a more extensive surgery done at about a year of age. This means no more casting, but we do have to continue physical therapy. But on the fun side we get have plenty of bath time!! Yeah!!

-We went to Kauai for my brother Brannon's wedding. Payton did great on the airplane and she got to put her feet in the ocean. We had a blast! There was snorkeling, volleyball, site seeing, boogie boarding, surfing, ect. The wedding ceremony was beautiful (on the beach) and the reception was awesome.

-Last, but certainly not the least Payton had her third MRI. This was just a follow up, but it showed some new information. At the last MRI reading they told us that she still the hydrocephalus, but it had not gone up. Also, that she had a grouping of cells they thought was a tumor (possibly benign) and that there was a piece missing from her cerebellum that might effect coordination. We were told that the hydrocephalus and missing piece would always be that way, but sometimes their brain can adapt and make up for the missing piece. Well, after this MRI the reading was much different........ the hydrocephalus is gone!! The tumor (or what ever it was) is only a little speck on the page and the missing piece is there!! Praise God!! It was so much information that it didn't hit me until we got out to the car. I couldn't believe what I had just heard! My daughter's brain is being healed and I know it's by God's mighty hand. Thank you for your prayers and continued support.

-Let that information sink in a little. I know it's a lot and I will try to update this more often! Thank you everyone for your prayers they mean so much!!

A little nervous!

My anxiety as a new mom might be getting the best of me, but I am getting a little nervous for Payton's upcoming MRI. Her first MRI she was only four days old so she didn't have to be sedated and it only took 45 mins. This time she has to be sedated with an IV and it's one hour of prep, 2 hour MRI and one more hour of recovery! I just get so nervous when I think about what she has to go through. It's like I can feel the pain and if I could take it away I would. I could really use some prayers right now, pray that God gives me the strength to get through it. I have great support from family and friends in my life, but nothing can match the power of God in our time of weakness and that is what I need! Sorry for the depressing blog and thanks for listening! I promise my next one will be better!!

Payton Grace Lunde----Well, twelve days late, 16 hours induced of labor and a c-section later....Payton was born on June 26th at 4:00AM, 6lbs 7oz and 20.5 inches! She is such a blessing. Payton is the sweetest baby and she already has her own little personality!

Payton was born with hydrosyphlis (swelling in the brain) and arthrogryposis ( joint dissorder). We were aware of the swelling, but the arthrogryposis came as a shock. We have had a lot of doctor appointments so far at children's hospital and the doctors and staff have been amazing. We are so greatful to have children's so close to home. The doctors are monitoring the hydrosyphlis with MRI's and her next one is on August 3rd. So, we will know if the swelling has gone up at all or if there is anything else they are concerened with. For the arthrogryposis there is a lot of physical therapy to streach out the joints. The occupational therapist made her splints for her wrists and has them on 8 hours at night and 8 hours durring the day and we do physical therapy 3-5 times a day. Her legs will have to be serial casted for a couple months. It's kinda like braces they will move her foot and leg till there is tention and then cast it. It will be casted for a couple of weeks and then they will do it again. Her first casting will be on August 26th. She is already more flexible and we can see such a change!!